By I. Scharrer,W. Schramm

a few 23. five% of all contributors and sufferers of therapy facilities accomplished the questionnaire. One remarkable truth is that participation used to be maximum among aged sufferers with serious hemophilia, while merely 12. 2% of family spoke back. review of the implications printed that most of contributors want deal with­ ment in a hemophilia therapy heart with a excessive attractiveness, while merely 2. 7% reflect on remedy in a really expert perform to be adequate. the explanations for which are the need of the 24-h-availability of a doctor, general certified exam of joints and muscle mass, documentation of product batches, laboratory exams and strong cooperation with different schools. As many as sixty eight. nine% of the sufferers occasionally commute greater than two hundred km. What definitely performs a job here's belief within the remedy middle and its physicians, for it truly is obvious that regardless of the truth that seventy four. three% re­ quested standardized remedy regimens for all therapy facilities, purely approximately 20% may swap to a closer heart. therapy with issue concentrates is mostly thought of to be very secure. that's to assert, fifty eight. 1 % regard recombinant items to be very secure, while simply 24. three% suppose this for plasma items. compared, there have been frequently no significant modifications saw relating to end result (factor intake, period of deal with­ ment). elevate in greatest garage temperature (47. 2%) and half-life (73%) have been the main common solutions to the query of what beneficial properties the goods should still have.

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31st Hemophilia Symposium: Hamburg 2000 by I. Scharrer,W. Schramm


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